We are a support and advocacy group for parents who have a child or teen who uses a ventilator full or part time (any type, including NIPPV.) Young adults who are on a vent from a childhood disorder or injury are also welcome to join!
Wednesday, December 7, 2011
Kids with Vents Facebook Group
We started out as a support group on Yahoo Groups, and we recently added a Kids with Vents Facebook group as a convenience to our families. The Facebook group is very popular and we already have over 350 members! If your child uses a ventilator or Bipap/AVAPS, you are welcome to join us! Teens and young adults on a vent (or Bipap/AVAPS) from a childhood condition or injury are also welcome! To join the Kids with Vents Yahoo group, just click on the link above the slide show. To be added to the Kids with Vents Facebook Group, go to: https://www.facebook.com/groups/kids.w.vents/ and click on "Join Group." Hope to see you there!
Labels:
AVAPS,
Bipap,
email,
Facebook,
Kids with Vents,
teens,
Ventilator,
Yahoo,
young adults
Friday, March 11, 2011
With Every Breath I Take
All the colors of the rainbow
All of voices of the wind
Every dream that reaches out
That reaches out to find where love begins
Every word of every story
Every star in every sky
Every corner of creation lives to testify
For as long as I shall live
I will testify to love
I'll be a whitness in the silences when words are not enough
With every breath I take I will give thanks to God above
For as long as I shall live
I will testify to love
From the mountains to the valleys
From the rivers to the sea
Every hand that reaches out
Every hand that reaches out to offer peace
Every simple act of mercy
Every step to kingdom come
All the Hope in every heart will speak what love has done.
I love this song - especially the middle part. Sometimes I wonder why God allowed me to be born with CCHS, but when I hear "With every breath I take I will give thanks to God above", I realize it doesn't matter if those breaths come from a ventilator. I am God's original creation, he formed my every cell, I am His child, and I am perfect the way I am!
Subscribe to:
Posts (Atom)