Kids with Vents Facebook Group

We started out as a support group on Yahoo Groups, and we recently added a Kids with Vents Facebook group as a convenience to our families.  The Facebook group is very popular and we already have over 350 members!  If your child uses a ventilator or Bipap/AVAPS, you are welcome to join us!  Teens and young adults on a vent (or Bipap/AVAPS) from a childhood condition or injury are also welcome!  To join the Kids with Vents Yahoo group, just click on the link above the slide show.  To be added to the Kids with Vents Facebook Group, go to: https://www.facebook.com/groups/kids.w.vents/ and click on "Join Group."  Hope to see you there!

With Every Breath I Take

Testify To Love - Avalon Lyrics

All the colors of the rainbow

All of voices of the wind

Every dream that reaches out

That reaches out to find where love begins

Every word of every story

Every star in every sky

Every corner of creation lives to testify

For as long as I shall live

I will testify to love

I'll be a whitness in the silences when words are not enough

With every breath I take I will give thanks to God above

For as long as I shall live

I will testify to love

From the mountains to the valleys

From the rivers to the sea

Every hand that reaches out

Every hand that reaches out to offer peace

Every simple act of mercy

Every step to kingdom come

All the Hope in every heart will speak what love has done.

I love this song - especially the middle part. Sometimes I wonder why God allowed me to be born with CCHS, but when I hear "With every breath I take I will give thanks to God above", I realize it doesn't matter if those breaths come from a ventilator. I am God's original creation, he formed my every cell, I am His child, and I am perfect the way I am!